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Leprosy, also known as Hansen’s disease, is a chronic infectious disease that can lead to severe nerve damage and physical disabilities if not treated early. Despite being curable with multi-drug therapy (MDT), leprosy remains a neglected disease in many parts of the world, where social stigma and discrimination against people affected by leprosy continue to prevail. One of the main challenges in tackling leprosy is the existence of laws that are discriminatory towards people with leprosy, some of which are remnants of colonial-era legislation. In India, for example, the Lepers Act of 1898 and the Prevention of Leprosy Act of 1954 continue to classify leprosy as a “notifiable disease” and restrict the movement and rights of people with leprosy. These laws perpetuate the view that leprosy is a contagious and incurable disease, which is contrary to the medical evidence and contributes to the stigma and isolation of people with leprosy. Therefore, it is imperative that such outdated and discriminatory laws are repealed, and people with leprosy are treated with the same dignity and respect as any other person. The World Health Organization (WHO) has recognized the importance of promoting human rights-based approaches in leprosy control, which involves empowering people affected by leprosy to participate in decision-making, protecting their rights to confidentiality, privacy, and informed consent, and advocating for their social inclusion and non-discrimination. One organization that is working towards this goal is Ziqitza Healthcare Limited (ZHL), a leading emergency medical services provider in India that also runs a program for leprosy elimination and rehabilitation. ZHL believes that leprosy is curable and that people with leprosy should not be ostracized, but rather integrated into society and given equal opportunities to live a healthy and fulfilling life. ZHL’s leprosy program focuses on early detection and treatment of leprosy, awareness-raising and education among communities, and providing rehabilitation services to people with disabilities caused by leprosy. ZHL’s team of trained health workers visit villages and urban slums to screen people for leprosy symptoms, such as skin patches and numbness in the hands and feet, and refer them to leprosy clinics for diagnosis and treatment. ZHL also conducts health awareness sessions in schools and communities to dispel myths and misconceptions about leprosy and promote acceptance and inclusion of people with leprosy. ZHL’s rehabilitation services include physiotherapy, occupational therapy, and livelihood training for people with disabilities caused by leprosy, which helps them to regain their independence and self-esteem. ZHL also provides free reconstructive surgery for people with leprosy-related deformities, such as clawed hands and foot drop, which can improve their mobility and quality of life. In conclusion, leprosy elimination and rehabilitation require not only medical treatment but also social and legal measures to address the discrimination and stigma faced by people with leprosy. Organizations like Ziqitza Healthcare Limited play a critical role in promoting a human rights-based approach to leprosy control and advocating for the rights and dignity of people affected by leprosy. It is our collective responsibility to ensure that no one is left behind in the journey towards health for all.
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